Caring the caregivers. An online psychological intervention for family caregivers of oncological palliative patients

  • Ana Monroy González Asociación Española Contra el Cáncer https://orcid.org/0000-0002-3322-3839
  • Carmen Yélamos Agua Asociación Española Contra el Cáncer https://orcid.org/0000-0003-0425-4799
  • Sofía Luque Suárez Asociación Española Contra el Cáncer https://orcid.org/0000-0002-7835-893X
  • Lorena Alonso Rivas Asociación Española Contra el Cáncer, Cáceres
  • Montserrat García Sanz Asociación Española Contra el Cáncer, Teruel
  • Mireia Golobardes Subiranad Asociación Española Contra el Cáncer, Barcelona
  • Miriam Sánchez Regadera Asociación Española Contra el Cáncer, Murcia
  • Elisa Nerea Ramos Díez-Astrain Asociación Española Contra el Cáncer, Valladolid
  • Ana Isabel Álvarez Jiménez Asociación Española Contra el Cáncer, Madrid
  • Salome Penélope Sanjurjo Álvarez Asociación Española Contra el Cáncer, Pontevedra
  • Adela Gálvez Anguita Asociación Española Contra el Cáncer, Málaga
  • Marta Balsera Güera Asociación Española Contra el Cáncer, Alicante
  • Javier Gil Murcia Asociación Española Contra el Cáncer, Alicante
Keywords: Palliative care, oncological patients, family caregivers, end-of-life, caregiver burden

Abstract

Aim: analyze the effectiveness of an online delivered psychological intervention program for oncological palliative caregivers in order to reduce the distress and caregiver burden. Methods: The program was developed for primary caregivers of advanced cancer patients, with a life expectancy of less than 6 months. The intervention consisted of 4 weekly sessions. The assessment instruments were the Caregiver Emotional Distress Detection Scale and the Zarit’s Reduced Scale and were applied at the beginning and end of the program. In addition, the main worries of the caregivers were categorized by the Caregiver Emotional Distress Detection Scale. Descriptive statistics and Student’s t were used. Results: 38 caregivers enrolled in intervention, 81.6% of whom were women. Regarding the degree of kinship, 44.7% were descendants of the patient. The distress was significantly reduced after the intervention. Uncertainty remained the main worry at both moments of measurement. Before the program, the second most frequent worry was the suffering of the patient, while after the intervention it was worries about the suffering of other family members. Conclusions: Carrying out this online group psychological intervention program proved to be effective in reducing emotional distress in the main caregivers of cancer patients at the end of life. Uncertainty was a constant concern throughout the program in the relatives.

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Published
2024-04-11
How to Cite
Monroy González A. ., Yélamos Agua C. ., Luque Suárez S., Alonso Rivas L., García Sanz M. ., Golobardes Subiranad M., Sánchez Regadera M. ., Ramos Díez-Astrain E. N. ., Álvarez Jiménez A. I. ., Sanjurjo Álvarez S. P., Gálvez Anguita A. ., Balsera Güera M. . y Gil Murcia J. . (2024). Caring the caregivers. An online psychological intervention for family caregivers of oncological palliative patients. Psicooncología, 21(1), 11-22. https://doi.org/10.5209/psic.94809
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Articles