The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team

Keywords: Health Personnel, Bereavement, Childhood Cancer, Palliative Care, Pediatrics

Abstract

Introduction: The health care offered to children and adolescents with cancer has been expanded, giving space to orthothanasia and palliative care, with a comprehensive look at the subject facing the threat to the continuity of life, as well as challenging professionals to access issues related to grief.

Objectives: In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology.

Method: A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software.

Results: The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences.

Conclusions: Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals.

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Author Biographies

Julita Gomes Maia de Sena, Ms, University of Fortaleza

Mestre e doutoranda em Psicologia

Aline Vieira de Vasconcelos, University of Fortaleza

Psicologa. Mestranda em psicologia

Leônia Cavalcante Teixeira, University of Fortaleza

Doutora em Psicologia. Professora do programa de pos-graduação em psicologia da Unifor.

Erasmo Miessa Ruiz, State University of Ceará

Doutor em Psicologia. Professor do programa de pós-graduação em psicologia da universidade estadual do ceará.

Railda Sabino Fernandes Alves, State University of Paraíba

Doutora em Psicologia. Professora do Programa de Pós-Graduação em Psicologia da Universidade Estadual da Paraíba.

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Published
2023-04-11
How to Cite
Gomes Maia de Sena J., de Freitas Melo C., Vieira de Vasconcelos A., Cavalcante Teixeira L. ., Miessa Ruiz E. . y Fernandes Alves R. S. . (2023). The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team. Psicooncología, 20(1), 103-119. https://doi.org/10.5209/psic.78677
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Articles