The perceptions of parents of children with cancer about changes in family relations

Abstract

Objectives: Understanding how parents perceive the changes that occur in family relations as a result of pediatric cancer. Method: We used a research methodology that is both group-based (self-help groups) and qualitative (discourse analysis of participants in group sessions). The sample is composed of 22 parents whose children contracted the disease more than two years before. Group sessions were held at the headquarters of ASPANION (Association of Parents of Children with Cancer of Valencia) in Valencia. Results: It is argued that the disease changes the relationships between family members: – Foreign partner: redistribution of roles, different ways to react and to take responsibility on the part of parents, difficulty in communication, alterations in sexual relationships, and so on. – Relations with other children and the sick child. – Relations with the extended family: support, lack of communication and development of inappropriate feelings. Problems in the management of the disease after hospitalization and development of recreational activities have also been